People often ask me if it isn’t hard for me, doing all of this on your own? And I think by myself, why hard for me? I’ve a full live, a great job, nice friends and family and yes, I’ve got two chronically ill daughters. But that is in the first place very hard for them. They’re the ones having to deal with all the pain and suffering and limitations in their daily life. And off course it hurts me to see them struggle through the day or when they have to cancel plans because the body just doesn’t cooperate. But still, it especially effects them and is hard for them. I can’t complain.