What is POTS?

One of the secondary disorders seen with EDS, and off which both Jane and Rose suffer from is POTS: Postural Orthostatic Tachycardia syndrome. It means that your heartbeat increases with more than 30 strikes while standing up or sitting down. The consequence can be that you feel lightheaded, start sweating, have blurry vision or passing out. If they stand “long”, the blood drops into the legs and they will faint. In addition, if the blood drops into the legs, it is not in your brain, which makes everything a lot more difficult.

As a consequence of this disorder the following complaints very often occur:

  • Fainting
  • Fatigue
  • Sleeping disorders
  • Headache
  • Blurry vision
  • Perspiration
  • Anxieties
  • Difficulties breathing or swallowing
  • Feeling lightheaded
  • Shortness of breath
  • Nausea
  • Overall weakness
  • Difficulties with physical exertions
  • Hypersensitivity to heat

Treatment of POTS can be to drink a lot, add a lot of salt to your food, wear support stockings to boost the blood circulation upward and medication. This can be a variety of medicines; there is no specific medication for POTS. It is often the side effects of medications that can bring improvement. Although POTS is often seen with EDS, POTS can also be caused by a viral infection, it occurs with people with hypervolemia and heredity can also play a role.